Comments on: Ileostomy Products or Appliances http://ileostomycare.com/ileostomy-products-or-appliances/ Mon, 25 Jul 2011 04:29:51 +0000 http://wordpress.org/?v=2.8.5 hourly 1 By: admin http://ileostomycare.com/ileostomy-products-or-appliances/comment-page-1/#comment-207 admin Mon, 10 Jan 2011 21:25:36 +0000 http://ileostomycare.com/?p=8#comment-207 Im very sorry to hear about your situation. I know how stressful and exhausting this can be. My brother experienced every detail of what you have described. Im hoping you have, by this time, found some method or process that works for your situation. My brother was eventually prescribed to Codeine pills as well as Lopermide. Both of these medications are being used to combat liquid stool. The medication helps a lot but its really a combination of things that help him. Eating on a schedule is very important. Eating dinner earlier will allow the foods to digest before bedtime which means there will be no output during sleep. The bags attached to a hose are not really necessary but if needed, they can help if needed. Dehydration has been a huge factor in my brothers life as well. If your husbands output can be slowed, the dehydration will become less of an issue. Im sure you know how important electrolytes are for your husband as well. My brother has learned to love Gatorade and other sports drinks as well as flavor packets for water. Two or three 32oz. bottles of Gatorade per day would be optimal for my brother, though he can rarely ingest this much liquid in a day. Dehydration will cause nausea which will only further the problem, so its important to work at slowing the output first. We have also found that using a convex barrier as well as an ostomy belt helps tremendously. I truly hope you can use some of the info I have provided. My brother was also sent home with an open abdominal wound. It was very important and difficult to keep it clean. We changed dressings very often. In fact, I began using more gauze on the wound in the area near the stoma. This would help collect some of the leakage and prevent it from reaching the wound. Good luck and best wishes! Michael Im very sorry to hear about your situation. I know how stressful and exhausting this can be. My brother experienced every detail of what you have described. Im hoping you have, by this time, found some method or process that works for your situation. My brother was eventually prescribed to Codeine pills as well as Lopermide. Both of these medications are being used to combat liquid stool. The medication helps a lot but its really a combination of things that help him. Eating on a schedule is very important. Eating dinner earlier will allow the foods to digest before bedtime which means there will be no output during sleep. The bags attached to a hose are not really necessary but if needed, they can help if needed. Dehydration has been a huge factor in my brothers life as well. If your husbands output can be slowed, the dehydration will become less of an issue. Im sure you know how important electrolytes are for your husband as well. My brother has learned to love Gatorade and other sports drinks as well as flavor packets for water. Two or three 32oz. bottles of Gatorade per day would be optimal for my brother, though he can rarely ingest this much liquid in a day. Dehydration will cause nausea which will only further the problem, so its important to work at slowing the output first. We have also found that using a convex barrier as well as an ostomy belt helps tremendously.

I truly hope you can use some of the info I have provided. My brother was also sent home with an open abdominal wound. It was very important and difficult to keep it clean. We changed dressings very often. In fact, I began using more gauze on the wound in the area near the stoma. This would help collect some of the leakage and prevent it from reaching the wound.

Good luck and best wishes!

Michael

]]> By: alicemac http://ileostomycare.com/ileostomy-products-or-appliances/comment-page-1/#comment-78 alicemac Sun, 26 Sep 2010 23:17:59 +0000 http://ileostomycare.com/?p=8#comment-78 My husband has an ileostomy, it has been six weeks now. Even with setting his alarm every 2 hours during the night it is still overflowing and coming away from the abdomen bursting all over the bed etc. We have tried bags with a tube exit attached to an overnight bag, this was not successful as solids blocked the tubing resulting in bag bursting over bedclothes and nightwear. Short of trying to patent some kind of wide flexible tubing which might be able to be fitted to the roll up closure end of the ileostomy bag and ensuring one could be developed that could be used and attached to an overnight bag designed for that purpose. Is there not some kind of bigger overnight bag that would accomodate this night time vesuvius without the weight of it dragging it away from the abdomen. My husband is also having the problem of very quickly dehydrating which requires hospital admission. A solution to this problem really has to be found as we are both sleep deprived and exhausted, and more importantly because he has an open abdominal wound which will take at least 6 months to heal and as you can imagine we are worried that the overflowing stoma material may contaminate it. We are trying all the usual foods to thicken the consistancy. He is using Salts Healthcare stomawear. Any advice will be very welcome. My husband has an ileostomy, it has been six weeks now. Even with setting his alarm every 2 hours during the night it is still overflowing and coming away from the abdomen bursting all over the bed etc. We have tried bags with a tube exit attached to an overnight bag, this was not successful as solids blocked the tubing resulting in bag bursting over bedclothes and nightwear. Short of trying to patent some kind of wide flexible tubing which might be able to be fitted to the roll up closure end of the ileostomy bag and ensuring one could be developed that could be used and attached to an overnight bag designed for that purpose. Is there not some kind of bigger overnight bag that would accomodate this night time vesuvius without the weight of it dragging it away from the abdomen. My husband is also having the problem of very quickly dehydrating which requires hospital admission. A solution to this problem really has to be found as we are both sleep deprived and exhausted, and more importantly because he has an open abdominal wound which will take at least 6 months to heal and as you can imagine we are worried that the overflowing stoma material may contaminate it. We are trying all the usual foods to thicken the consistancy. He is using Salts Healthcare stomawear. Any advice will be very welcome.

]]> By: Neal http://ileostomycare.com/ileostomy-products-or-appliances/comment-page-1/#comment-50 Neal Fri, 13 Aug 2010 16:54:50 +0000 http://ileostomycare.com/?p=8#comment-50 Hi Jane, Sorry to hear about your brother, it must be very distressing for him. I am an ostomy clinician and I encounter this problem fairly frequently.High output ileostomies can be difficult to manage not only for the bags which leak but also for the risk of dehydration. The previous post give some excellent advice in terms of foods that can thicken stool. A lot of "white" foods can help thicken stomal output. Others are; applesauce bananas, cheese, marshmallows, creamy peanut butter pretzels, rice, bread, tapioca, yogurt, bagels and oatmeal. Some foods besides high sugar ones can also hloosen stool to increase output such as beer, a larger intake of fruit juices (greater than 500mls a day, but this varies among individuals) spicy foods, fried foods and some raw vegetables. For medication, in addition to codeine, a person can take immodium.A usual dose is one 2mg pill with each meal and at bed time. A person can take up to 8 pills per day (2 pills at a time) without any problem. If your brother is going through 3-4 pouches a day it is already more expensive than using the high output pouch. Coloplast and Hollister make some good ones. A 2 piece version depending on the size of your brothers stoma is the Hollister New Image18012 (44mm) 18013 (57mm) and 18014 (70mm) and matched with the appropriate flextend flange profile(flat or convex) and size. They also come in a one piece (80070, 80110), but they are not as popular as the two piece. Both types have a spout which can be attached to a straight drainage bag (Bard) which is usually used for patients with urinary catheters. Spouts will work better if the output from the ileostomy is fairly thin and watery. Another two piece system is the Coloplast Sensura Click High output pouch 2846 (50mm) and 2847 (60mm) matched with right size skin barrier. These can also be attached to a drainage bag. You can contact each of these companies and talk with a sales associate who could send out some free samples for your brother to try. I am also wondering how the skin around his stoma is. If the skin is raw andd red the appliance will not stick very well as they need a dry surface to adhere to. A solution is called "Crusting" where ostomy powder is lightly dusted onto the raw skin then sealed in by blotting with 3M cavilon skin wipes.This can be repeated up to 2 more times allowing 30-60seconds between application to allow it to dry. The products do not harm the stoma. The appliance should be changed every 2-3 days until the skin heals. When the skin is healed discontinue crusting. Hope this helps, Neal Hi Jane,

Sorry to hear about your brother, it must be very distressing for him. I am an ostomy clinician and I encounter this problem fairly frequently.High output ileostomies can be difficult to manage not only for the bags which leak but also for the risk of dehydration. The previous post give some excellent advice in terms of foods that can thicken stool. A lot of “white” foods can help thicken stomal output. Others are; applesauce bananas, cheese, marshmallows, creamy peanut butter pretzels, rice, bread, tapioca, yogurt, bagels and oatmeal. Some foods besides high sugar ones can also hloosen stool to increase output such as beer, a larger intake of fruit juices (greater than 500mls a day, but this varies among individuals) spicy foods, fried foods and some raw vegetables.
For medication, in addition to codeine, a person can take immodium.A usual dose is one 2mg pill with each meal and at bed time. A person can take up to 8 pills per day (2 pills at a time) without any problem.
If your brother is going through 3-4 pouches a day it is already more expensive than using the high output pouch. Coloplast and Hollister make some good ones. A 2 piece version depending on the size of your brothers stoma is the Hollister New Image18012 (44mm) 18013 (57mm) and 18014 (70mm) and matched with the appropriate flextend flange profile(flat or convex) and size. They also come in a one piece (80070, 80110), but they are not as popular as the two piece. Both types have a spout which can be attached to a straight drainage bag (Bard) which is usually used for patients with urinary catheters. Spouts will work better if the output from the ileostomy is fairly thin and watery. Another two piece system is the Coloplast Sensura Click High output pouch 2846 (50mm) and 2847 (60mm) matched with right size skin barrier. These can also be attached to a drainage bag. You can contact each of these companies and talk with a sales associate who could send out some free samples for your brother to try.
I am also wondering how the skin around his stoma is. If the skin is raw andd red the appliance will not stick very well as they need a dry surface to adhere to. A solution is called “Crusting” where ostomy powder is lightly dusted onto the raw skin then sealed in by blotting with 3M cavilon skin wipes.This can be repeated up to 2 more times allowing 30-60seconds between application to allow it to dry. The products do not harm the stoma. The appliance should be changed every 2-3 days until the skin heals. When the skin is healed discontinue crusting.

Hope this helps, Neal

]]> By: admin http://ileostomycare.com/ileostomy-products-or-appliances/comment-page-1/#comment-45 admin Wed, 11 Aug 2010 03:46:34 +0000 http://ileostomycare.com/?p=8#comment-45 Jane, Im very sorry to hear about the failed reversal. Do they plan to try again at a later date? High output is a very serious problem, and in my opinion, the most serious problem with an ileostomy. My brother has the same issues and has spent days and weeks at a time in the hospital due to dehydration from high output. It really comes down to finding a combination of meds and foods that slow the output. My brother is prescribed to a combination of codeine, lopermide, and famotidine. The lopermide and famotidine do very little to assist in slowing the output. The codeine however, which is usually prescribed for pain relief, causes constipation which is a very good thing in the case of a person with high output. The foods ingested may be the most important factor of all. There is a list here at ileostomycare.com of foods that will thicken and slow output. Pasta tends to work very well. Foods high in sugar such as sodas or junk foods will have an adverse affect on output causing very high output. I have seen the self-draining pouches you mention but have never seen them available for sale. You might want to contact convatec or hollister and ask them. Convatec will answer any questions you may have and will even send out a starter pack of appliances for free. Its very much worth contacting one their ostomy nurses. On the other hand, a pouch like the one you mentioned may cause more immobility than necessary. I know how stressful and depressing this can all be. It is very important that your cousin experiment with different foods and medications(under care of a physician) until he finds what works for him. Its also very important for him to realize that he can still live a normal life. I wish you and your cousin the best and im sorry for not replying sooner. Please keep me posted on how things have worked out. Mike Jane,
Im very sorry to hear about the failed reversal. Do they plan to try again at a later date? High output is a very serious problem, and in my opinion, the most serious problem with an ileostomy. My brother has the same issues and has spent days and weeks at a time in the hospital due to dehydration from high output. It really comes down to finding a combination of meds and foods that slow the output. My brother is prescribed to a combination of codeine, lopermide, and famotidine. The lopermide and famotidine do very little to assist in slowing the output. The codeine however, which is usually prescribed for pain relief, causes constipation which is a very good thing in the case of a person with high output. The foods ingested may be the most important factor of all. There is a list here at ileostomycare.com of foods that will thicken and slow output. Pasta tends to work very well. Foods high in sugar such as sodas or junk foods will have an adverse affect on output causing very high output.
I have seen the self-draining pouches you mention but have never seen them available for sale. You might want to contact convatec or hollister and ask them. Convatec will answer any questions you may have and will even send out a starter pack of appliances for free. Its very much worth contacting one their ostomy nurses. On the other hand, a pouch like the one you mentioned may cause more immobility than necessary.
I know how stressful and depressing this can all be. It is very important that your cousin experiment with different foods and medications(under care of a physician) until he finds what works for him. Its also very important for him to realize that he can still live a normal life. I wish you and your cousin the best and im sorry for not replying sooner. Please keep me posted on how things have worked out.

Mike

]]> By: Jane Cole http://ileostomycare.com/ileostomy-products-or-appliances/comment-page-1/#comment-7 Jane Cole Fri, 02 Apr 2010 10:53:38 +0000 http://ileostomycare.com/?p=8#comment-7 I need some advice on behalf of my cousin who has had an illeostomy since September 2009. Unfortunately he had a failed reversal in January this year. Practically every night his bag bursts, due to high output. He is seen regularly by the district Nurse,Stoma Nurse, G.P., but no-one seems to beable to help him with this high output. He has to wash his sheets everyday and for a man living on his own it is very stressful and depressing for him. He was recently in Hospital overnight with dehydration and was sent home the next day with Dyrolite or similar. When he was on the ward, after his last operation he was given a high output bag which was attached to a tube and drainable bag, which they say he can not have on the community as it is too expensive. This I find unbelievable as the amount of bags he is getting through per day, approx.,3-4 must also cost alot of money. Can you suggest something to help him, I am willing to buy these alternative bags for him. Thanking you in anticipation of an early reply. Kind regards, Jane Cole I need some advice on behalf of my cousin who has had an illeostomy since September 2009. Unfortunately he had a failed reversal in January this year.
Practically every night his bag bursts, due to high output. He is seen regularly by the district Nurse,Stoma Nurse, G.P., but no-one seems to beable to help him with this high output.
He has to wash his sheets everyday and for a man living on his own it is very stressful and depressing for him.
He was recently in Hospital overnight with dehydration and was sent home the next day with Dyrolite or similar.
When he was on the ward, after his last operation he was given a high output bag which was attached to a tube and drainable bag, which they say he can not have on the community as it is too expensive.
This I find unbelievable as the amount of bags he is getting through per day, approx.,3-4 must also cost alot of money.
Can you suggest something to help him, I am willing to buy these alternative bags for him.
Thanking you in anticipation of an early reply.
Kind regards,
Jane Cole

]]>