3 Comments
Jane,
Im very sorry to hear about the failed reversal. Do they plan to try again at a later date? High output is a very serious problem, and in my opinion, the most serious problem with an ileostomy. My brother has the same issues and has spent days and weeks at a time in the hospital due to dehydration from high output. It really comes down to finding a combination of meds and foods that slow the output. My brother is prescribed to a combination of codeine, lopermide, and famotidine. The lopermide and famotidine do very little to assist in slowing the output. The codeine however, which is usually prescribed for pain relief, causes constipation which is a very good thing in the case of a person with high output. The foods ingested may be the most important factor of all. There is a list here at ileostomycare.com of foods that will thicken and slow output. Pasta tends to work very well. Foods high in sugar such as sodas or junk foods will have an adverse affect on output causing very high output.
I have seen the self-draining pouches you mention but have never seen them available for sale. You might want to contact convatec or hollister and ask them. Convatec will answer any questions you may have and will even send out a starter pack of appliances for free. Its very much worth contacting one their ostomy nurses. On the other hand, a pouch like the one you mentioned may cause more immobility than necessary.
I know how stressful and depressing this can all be. It is very important that your cousin experiment with different foods and medications(under care of a physician) until he finds what works for him. Its also very important for him to realize that he can still live a normal life. I wish you and your cousin the best and im sorry for not replying sooner. Please keep me posted on how things have worked out.
Mike
Jane,
Im very sorry to hear about the failed reversal. Do they plan to try again at a later date? High output is a very serious problem, and in my opinion, the most serious problem with an ileostomy. My brother has the same issues and has spent days and weeks at a time in the hospital due to dehydration from high output. It really comes down to finding a combination of meds and foods that slow the output. My brother is prescribed to a combination of codeine, lopermide, and famotidine. The lopermide and famotidine do very little to assist in slowing the output. The codeine however, which is usually prescribed for pain relief, causes constipation which is a very good thing in the case of a person with high output. The foods ingested may be the most important factor of all. There is a list here at ileostomycare.com of foods that will thicken and slow output. Pasta tends to work very well. Foods high in sugar such as sodas or junk foods will have an adverse affect on output causing very high output.
I have seen the self-draining pouches you mention but have never seen them available for sale. You might want to contact convatec or hollister and ask them. Convatec will answer any questions you may have and will even send out a starter pack of appliances for free. Its very much worth contacting one their ostomy nurses. On the other hand, a pouch like the one you mentioned may cause more immobility than necessary.
I know how stressful and depressing this can all be. It is very important that your cousin experiment with di
One-Piece- A one piece appliance contains the bag and the adhesive skin barrier or flange together as a one-piece unit. The flange has a hole that may be cut to fit the particular stoma size before being adhered to the skin. Some one-piece appliances may be pre-cut to the size of a patients stoma.
The flange adheres to the skin and the pouch is attached to it. The flange can stay in place while the pouch is removed and replaced with another. This type of appliance is stronger and may be the preferred unit for someone experiencing skin sensitivity.
I need some advice on behalf of my cousin who has had an illeostomy since September 2009. Unfortunately he had a failed reversal in January this year.
Practically every night his bag bursts, due to high output. He is seen regularly by the district Nurse,Stoma Nurse, G.P., but no-one seems to beable to help him with this high output.
He has to wash his sheets everyday and for a man living on his own it is very stressful and depressing for him.
He was recently in Hospital overnight with dehydration and was sent home the next day with Dyrolite or similar.
When he was on the ward, after his last operation he was given a high output bag which was attached to a tube and drainable bag, which they say he can not have on the community as it is too expensive.
This I find unbelievable as the amount of bags he is getting through per day, approx.,3-4 must also cost alot of money.
Can you suggest something to help him, I am willing to buy these alternative bags for him.
Thanking you in anticipation of an early reply.
Kind regards,
Jane Cole